One of the wonderful things about our religion is our claim to the biblical priesthood power, or the authority to act in the name of God. This includes the gift of healing. A gift my husband, her father, holds.
As we were preparing to be flown to SLC, we knew that it must be serious and we made arrangements to give her a blessing. In that blessing she was promised that she would have a complete recovery. It seemed very reasonable at the time. We went on with the events that unfolded, comforted in the knowledge that all would end well. It gave us great strength to know she would pull through.
Once she had had her initial evaluation and surgery, the doctor came out and said the exact same words, that he expected a full recovery. As things progress and we have our ups and downs there are days that I wonder if a complete recovery is still possible. It is testing my faith and I am sure hers as well, but deep down in I believe we know all will be well. What a gift.
The next week was a maze of doctors visits, instacare visits, ER visits, and consultations with more doctors. She was “diagnosed” with all the common problems but didn’t respond to anything. She developed a mystery rash, and every explanation was given, but not supported by the lab work. The only other possibility was linked to a new medication that she was taking, and there was the possibility that she may be developing an incredibly rare syndrome that was so rare most doctors in our area had only seen it once, if they had seen it at all. We were told not to worry about it because it was really, really unlikely. Not only that you would know it if you had it because your skin would start falling off. Yes, we had the right rash, but no skin was falling off.
As we treated the symptoms and nothing seemed to help. I became unusually concerned. Even Katie became unusually concerned. I had downloaded a new song to learn on the piano that brought me great peace. It was an arrangement of “Be Still My Soul.” I played it often. I felt myself having less and less interest in daily activities as I began to focus on Katie. The Lord was preparing us for a horrific experience. It was late Thursday night when we noticed the most disturbing symptoms yet. Katie’s mouth was too inflamed and pussy to eat or drink. She had completely lost any sense of taste, and she did develop some blisters that were the first definitive sign that we were probably looking at Stevens Johnsons Syndrome, and yes, pieces of her skin may begin to fall off soon. It was disturbing, but in retrospect, that week had prepared us emotionally.
I’m not sure the best way to re-blog this article from “The Blaze,” but I really wanted to share it anyway. Here is a link to their article “Eight life-defining moments that will take your breath away (PHOTOS)” or you can get it through my face book page.
I recently inherited a dining room set from my grandmother. As the set was pulled out of storage, it showed signs of wear and tear, but was structurally in good shape. One of the things that needed to be replaced were the seat covers. My poor aunt was embarrassed about the condition of the seat covers and offered to buy some fabric. Instead I told her we could just wait until I got the entire set transported. (I live 4 hours away.) As the last load was being delivered I decided to go through a box of odds and ends fabric that I had picked up at a yard sale a few months back. In all the scraps were some squares of neutral colored upholstery fabric. As I pulled them out, someone had cut them into squares that looked about the right size for the seats I was getting. I decided to do a test square. It fits exactly. I have all the fabric I need, pre-cut, ready to go. It took me about 15 minutes to do the entire first chair. And yes, there is just enough fabric for the entire set.
My husband lost his job, again. It was devastating, again.
The day before they let him go I had just paid the rest of the bills for the month. The very next work day he got a phone call that someone needed a piano tune that afternoon, so we have gas money for another week as well. It isn’t a replacement, but I do think it is evidence and hope that the Lord will get us through until the next thing comes along. Hope brings faith, faith brings miracles?
Obviously there have been many miraculous advances in medicine in general. Today I am grateful for the availability that we have to access those advances. My family suffers from multiple mental health issues. While much of the research is still in its infancy, we are a lot further along than we were even 20 years ago. I am preparing to attend a full day workshop to learn how to manage the effects of these illnesses. I am excited for the information that will be available to me.